Hi, I am Malcolm and I have sickle cell anemia. I like Pokémon and cars, but what I don't like is talking about my sickle cell. The more I talk about my illness the worse I start to feel. It makes me sad when I think of how I am different.
I wish I was like everybody else, but my pain reminds me I'm not. I can't do whatever I want or eat whatever I want. I'm always thinking that this might get me sick. I don't like being sick. The pain doesn't feel good, but I just want to be treated like I am normal. I don't like to be reminded that I have this painful disease. I want other kids with rare diseases to know that they too are special. It is okay to feel special!